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25 Temmuz 2016 Pazartesi

Kate Granger inspired all of us in the NHS to be more compassionate

He’d been rushed the day before to our surgical emergency unit. An elderly man, crying out in pain, he’d looked haggard, gaunt and frightened as we wheeled him straight to the CT scanner. Now, stripped of his clothes and draped in a gown, he stared up in trepidation as my consultant surgeon, impatient to be done with his morning ward round, stopped by the bedside. Without so much as an introduction, this experienced doctor broke the news to the patient of his terminal illness by turning to the bedside entourage and muttering, perfectly audibly: “Get a palliative care nurse to come and see him.” No one had even told “him” he had cancer.


As panic began to rise in my patient’s face, I remember catching the ward sister’s eye to see her cringing alongside me. The ward round had already swept on. I felt sick, complicit in something barbaric. But, as an inexperienced house officer barely qualified as a doctor, I scuttled dutifully after my boss, leaving someone else to pick up the pieces.


Related: I want my legacy to be that the NHS treats all patients with compassion


For the past five years, one woman has unleashed a quiet revolution to banish such casual brutality from our NHS. My fellow doctor Kate Granger died on 23 July from a rare and aggressive form of sarcoma. Three years ago – without introducing himself or even looking her in the eye – a doctor issued her with a death sentence by telling her that her cancer was inoperable. She told delegates at the annual NHS Confederation conference in 2014: “Without any warning or asking if I wanted anyone with me, he just said, ‘Your cancer has spread’. He then could not leave the room quickly enough and I was left in deep psychological distress. I never saw him again.”


Aged 29, Kate harnessed the inhumanity of her treatment that day to become a tireless campaigner for kindness and compassion in the NHS. Her idea was simple but brilliant. She wanted NHS staff to build vital, caring relationships with their patients by – at the very least – introducing themselves by name. Her #hellomynameis campaign, launched with a single tweet, turned into a nationwide NHS movement, with more than 400,000 frontline NHS staff and innumerable hospital trusts backing it.



Dr Kate Granger


Dr Kate Granger’s #hellomynameis campaign has turned into a nationwide movement. Photograph: Dominic Lipinski/PA

Kate didn’t know it but she, more than any other individual, inspired in me zero tolerance of the inadvertent, accidental, all too frequent inhumanity we in the caring professions sometimes display towards our patients. Though we met only once, and I never felt able to tell her she was my unsung heroine, her example imbues my daily practice. Each morning, I prepare for my ward round by slinging a stethoscope round my neck, clipping a pager to my waistband and pinning my name badge carefully to my collar. No patient of mine will know me only as an anonymous, identikit doctor. I greet every one of them with my name and a smile.


The truth is that through her dual perspectives as doctor and patient, Kate forced all of us in the NHS to confront uncomfortable truths about the ways we may unintentionally strip our patients of their dignity and individuality. For me, it started in medical school when, over many months, I dissected skin from muscle, sinew from bone until I’d mastered human anatomy through the precision flaying of a human corpse, but had been forced to wall off something primitive within me that would, from now on, temper empathy with new-found detachment.


That process continued after qualification. If doctors allowed our emotions free reign on the ward, if we empathised in full with the life and death enormities that suffuse every hospital, we’d be useless with grief, no good to anyone. To function, we have to keep ourselves in check, at least to some degree.


Perhaps more than anything, the enemy of compassion in today’s NHS is understaffing. When doctors and nurses are too few on the ground we are left scrabbling, exhausted and demoralised, merely to keep our patients safe. Taking time to connect with our patients as fellow human beings is all too often squeezed out.


Kate reminded us all that kindness, though freely dispensed, is priceless. If we lose our humanity, we are shadows of the doctors we should be. I like to believe that her legacy in part will be that every one of your doctors and nurses might sometimes, thanks to her, intone the same silent plea: “When you lie before me in your hospital bed, distressed, frightened, in pain, vulnerable, may the day never come that I cease to see an individual, a human being in front of me.”


I know I do. Thank you, Kate, for your inspiration.


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Kate Granger inspired all of us in the NHS to be more compassionate

14 Mayıs 2014 Çarşamba

Stephen Sutton: zest for lifestyle that inspired a nation to give

He became a nationwide figure almost overnight by harnessing the energy of social media, using Twitter and Facebook to spread his message and direct folks to his Just Giving web webpage. Through “micro-donations” of just a handful of lbs per person, he raised a total which stood at £3.5 million on Wednesday evening, which includes £300,000 donated after his death.


David Cameron, who met Mr Sutton earlier this month, led the tributes, saying a “very, very vivid light” had gone out.


The Prime Minister explained: “I can hardly consider of any individual I’ve met with this kind of a zest for lifestyle, and such a belief that you can get things completed.”


Mr Sutton, from Burntwood, Staffs, was diagnosed with metastatic bowel cancer aged 15, following six months of ache in which his family’s fears that he had cancer have been repeatedly dismissed by medical doctors.


Stephen Sutton achieved a lot of of his bucket-checklist wishes and raised hundreds of thousands for cancer investigation before his death (PA)


A county regular athlete and a youth player for Walsall FC, he left college with straight A-grades and was interviewed by Cambridge University, exactly where he wished to study medicine. He withdrew his application after currently being advised in November 2012 that the cancer had spread to his groin and pelvis, but he refused to dwell on what may have occurred if he had been diagnosed earlier.


The comedian Jason Manford, who met Mr Sutton following a show to increase money for the TCT, stated: “He wasn’t even bitter about having a short life, he wasn’t angry he was obtaining to depart the get together early, he was just satisfied that he had ever been invited.”


Realising he would by no means be a physician, he just readjusted his sights on fundraising and started a blog in January 2013. It incorporated a “bucket list” of 46 items he wished to do ahead of he died, which led to him skydiving and playing the drums in front of 90,000 folks ahead of the Champions League final at Wembley final May.


But leading of his list was his ambition to increase £10,000 for the Teenage Cancer Believe in, which he rapidly surpassed right after his appeal went viral on the net.


It accelerated in April, when he published a picture of himself smiling in his hospital bed, admitting the finish was near, with the phrases: “It’s a ultimate thumbs-up from me.” Manford began a #thumbsupforStephen Twitter campaign, bringing support from hundreds of 1000′s of people such as celebrities like Benedict Cumberbatch, David Tennant, Jimmy Carr and Jonathan Ross.


Remarkably, Mr Sutton made a temporary recovery following he “coughed up” a tumour, providing him a treasured handful of extra days. In a normally upbeat Facebook posting on May eight, he wrote: “I truly see myself as very fortunate — despite being incurable for a whilst I have had a sustained time period of really great wellness … My disease is quite superior and will get me eventually, but I will consider my damn hardest to be right here as prolonged as achievable.”


Manford stated: “The cause we took to him so passionately was simply because he was better than us. He did anything none of us could even think about performing.”


The Teenage Cancer Trust said Mr Sutton had left a legacy that would make an “enormous difference” to the seven young people diagnosed with cancer each and every day, with an announcement on how the cash would be spent to be created soon.


Stephen Sutton (NEWSTEAM)


Timeline


Sept 2010 Aged 15, Stephen is diagnosed with bowel cancer. Has surgical treatment and six months of chemotherapy. Achieves 5A*s and 4As in his GCSEs.


Summer season 2011 Told he is in remission.


Oct 2011 Finds lump in his leg. A lot more surgical treatment and 30 sessions of radiotherapy comply with.


June 2012 Will get A* in A-degree maths and A-grades in AS biology, chemistry, physics and psychology. Tumour in his leg returns, cancer spreads to groin and pelvis.


Nov 2012 Advised cancer is incurable.


Jan 2013 Begins Stephen’s Story website on Facebook, including bucket listing of 46 things he desires to do before he dies. At the prime is “raise £10,000 for Teenage Cancer Trust”. He will obtain 34 of his wishes, such as sky-diving, getting a tattoo, hugging an elephant and playing the drums before the Champions League final at Wembley.


March 5 2013 Getting raised his £10,000 target he sets a new target of £50,000, which rapidly goes up to £100,000.


June 24 2013 Launches personal YouTube channel.


Feb 7 2014 Total raised reaches £500,000.


March 26 Meets Jason Manford and other comics at Royal Albert Hall fundraising concert.


April 22 Posts on Facebook a “final thumbs up” picture taken in hospital, saying: “It’s a shame the finish has come so abruptly.” Following Manford launches #thumbsupfor Stephen Twitter campaign, the site goes viral.


April 27 Problem improves after he coughs up a tumour. Net trolls query the reality of his story. Fundraising passes £2m.


May two Fundraising reaches £3m. Stephen meets David Cameron and is launched from hospital. He is told he may be eligible for a new trial drug.


Could 4 Sets Guinness World Record for the most folks creating a heart-shaped indicator collectively (554).


May possibly 11 Posts his last message on Facebook, saying he is back in hospital but “there is no quick panic”. Jokes that it is “inconvenient” because he was due to seem on BBC Breakfast.


Could 13 Stephen’s household say his lung tumours have regrown.


May 14 Stephen’s mother announces his death via his Facebook weblog.



Stephen Sutton: zest for lifestyle that inspired a nation to give

Stephen Sutton dies: an uplifting life that inspired millions

Number of situations can appear as cruel or as bleak as a 19-year-previous boy dying of cancer. And yet, in the situation of Stephen Sutton, who died peacefully in his rest in the early hrs of Wednesday morning, it became an inspiring, uplifting tale for millions of individuals.


Sutton was already anything of a regional hero in his native Birmingham, but it was an extraordinary Facebook update in April that catapulted him into the nationwide spotlight.


“It really is a ultimate thumbs up from me”, he wrote, accompanied by a selfie of him lying in a sickbed, covered in drips, smiling cheerfully with his thumbs in the air. “I’ve carried out effectively to blag issues as nicely as I have up until now, but however I feel this is just one hurdle also far.”


It was an extraordinary minute: many would forgive a youthful man currently being robbed of existence in his prime becoming total of rage and misery. And but right here was a basic, understated show of cheerful defiance.


Sutton had initially set a fundraising target of £10,000 for the Teenage Cancer Trust. But the emotional influence of that selfie was so profound that, in a matter of days, much more than £3m was donated.


He made a short-term recovery that baffled doctors he explained that he had “coughed up” a tumour. And so began an extraordinary dialogue with his well-wishers.


To his very own astonishment nearly a million men and women liked his Facebook web page and tens of 1000′s followed him on twitter. It is trendy to be downbeat about social media: to dismiss it as getting riddled with the banal and the narcissistic, or for stripping human interaction of warmth as conversations shift away from the “true planet” to the on the internet sphere.


But it was hard not to be moved by the on the internet response to Stephen’s story: a national wave of emotion that is not normally forthcoming for those outside the world of celebrity.


His social media updates had been relentlessly upbeat, placing these of us who have tweeted moaning about a cold to shame. “Just one more update to let everybody know I am still doing and feeling very well,” he reassured followers significantly less than a week prior to his death. “My ailment is extremely sophisticated and will get me ultimately, but I will consider my damn hardest to be right here as lengthy as possible.”


Sutton was diagnosed with bowel cancer in September 2010 when he was 15 tragically, he had been misdiagnosed and taken care of for constipation months earlier.


But his response was unabashed positivity from the really starting, even describing his diagnosis as a “very good factor” and a “kick up the backside”.


The day he began chemotherapy he attended a celebration dressed up as a granny – he was so thin and pale, he said, that he was “quite convincing”. He refused to get time off school, exactly where he excelled.


When he was diagnosed as terminally ill two many years later he set up a Facebook page with a bucketlist of factors he desired to achieve, it included sky-diving, crowd-surfing in a rubber dingy, and hugging an animal bigger than himself (an elephant, as it would turn out).


But it was his fundraising for cancer that became his passion, and his efforts will undoubtedly transform the lives of some of the 2,200 teenagers and young grownups diagnosed with cancer each and every 12 months.


The Teenage Cancer Trust on Wednesday said it was humbled and hugely grateful for his efforts, with donations even now ticking up and reaching £3.34m by mid-afternoon .


His dream had been to grow to be a medical doctor. With that ambition stolen away from him, he sought and discovered new approaches to support people. “Spreading positivity” was another key aim. Four days ago, he organised a Nationwide Excellent Gestures Day, in Birmingham, giving out “cost-free higher-fives, hugs, handshakes and fist bumps”.


Indeed, it was not just income for cancer Sutton was following. He grew to become an evangelist for a new technique to daily life.


“I never see the level in measuring life in time any far more,” he told one particular crowd. “I would rather measure it in terms of what I in fact achieve. I’d rather measure it in terms of creating a difference, which I believe is a considerably more valid and pragmatic measure.”


By such a measure, Sutton could scarcely have lived a longer, richer and much more fulfilling life.


Celebrities had been amid these who were captivated by Sutton. The comedian Jason Manford championed Sutton’s fundraising, placing on a gig that offered out within four minutes. “It is been the most existence affirming week of my existence,” Manford tweeted me at the end of April. “That boy deserves the globe.”


Entertainers from Ricky Gervais to Benedict Cumberbatch cheered him on. David Cameron visited him in hospital.


“The reason we took to him so passionately was due to the fact he was greater than us, he did some thing that none of us could even imagine undertaking,” Manford explained in a statement on Wednesday. “In his darkest hour he selflessly devoted his ultimate moments to raising hundreds of thousands of pounds for teenagers with cancer.”


Others having to pay tribute included Clare Balding, Barry Manilow and Kevin Pietersen.


In his last few weeks Sutton was a star-struck teenager, unable to procedure the outpouring of emotion and compassion that he had triggered. He did not want to die, but his thirst for existence did not manifest itself in gloomy or depressing techniques.


“Cancer sucks, but daily life is great,” was his motto. His thumbs-up gesture became instantaneously recognisable.


Announcing Stephen’s death, his mom wrote that “her heart is bursting with pride but breaking with soreness for my courageous, selfless, inspirational son”, and that the “ongoing help and outpouring of adore for Stephen will assist tremendously at this difficult time, in the same way as it assisted Stephen during his journey”.


Her pride undoubtedly has considerably to do with the truth that cancer by no means defeated Sutton, even although it took his existence. He will not just be remembered his fundraising or his refusal to be defined by his cancer. He inspired men and women to embrace life, regardless of the obstacles, to be full of compassion, and to seem soon after every single other. That is quite a legacy for a 19-year-outdated boy from Birmingham.



Stephen Sutton dies: an uplifting life that inspired millions

In photographs: Stephen Sutton - how a teenager with cancer inspired the nation



Teenager cancer victim Stephen Sutton has died, his household announced. The 19-yr-old, who raised more than £3million for charity, misplaced his battle with bowel cancer early this morning. Announcing his death, his mom Jane wrote: “My heart is bursting with pride but breaking with discomfort for my courageous, selfless, inspirational son who passed away peacefully in his rest in the early hours of this morning, Wednesday 14th Might.


Picture: PA




In photographs: Stephen Sutton - how a teenager with cancer inspired the nation