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19 Ekim 2016 Çarşamba

‘Like doctors in a war’: inside Venezuela’s healthcare crisis

Doctor María Gonzales cannot recall the exact moment when she realised Venezuela’s health crisis had enveloped her hospital, the Luís Razetti in the Caribbean coastal city of Barcelona.


It may have been during a surge in cases of scabies, a skin infection that ought to be easily prevented with soap, water and disinfectant. It could have been her first sight of an emaciated child, something she had only previously seen in medical books or documentaries about famines in Africa. Or perhaps it was when she found herself prescribing a 40-minute cold shower because the pharmacy had run out of anti-fever drugs.


But the severity of the situation was certainly clear earlier this month, when a patient came in with a suspected case of diphtheria – a disease that Venezuela was supposed to have eradicated more than 20 years ago.


“It’s like we have returned to the last century,” she says. “Everything is going backwards.”


The refrain is increasingly common among medical professionals in Venezuela, where acute shortages of food, drugs and sanitary products threaten to reverse decades of health gains.


Despite its immense oil wealth, the country is in the midst of devastating economic, social and health crises. It has the world’s steepest economic decline, the second highest murder rate and the sharpest-rising inflation (forecast to reach 2,200% by the end of next year, according to the International Monetary Fund).


These problems all converge in the nation’s hospitals, where doctors report rising levels of mortality thanks to a dire shortage of medical supplies, shutdowns of operating theatres, staff declines and violent crime, including gun shots during surgery and mugging in corridors.


For years, among the proudest boasts of the Bolivarian Socialist administration was that it eradicated hunger, reduced poverty and improved healthcare for the poor.


But the trend is now appears to be moving in the opposite direction at an alarming speed. Reliable data is hard to find. The government has acknowledged that maternal mortality – a key healthcare indicator – has doubled in the past year. The opposition says the deterioration is five fold – and that death of newborns increased 100 fold.


The Venezuelan Health Observatory, a research centre at the Central University of Venezuela in Caracas, estimates that fewer than 10% of operating theatres, emergency rooms and intensive care units are fully operational. It says 76% of hospitals suffer from scarcity of medicines, 81% have a lack of surgical materials and 70% complain of intermittent water supply.


“We are seeing a collapse in the public health system.” said Maritza Landaeta, a senior member of the Health Observatory. “Venezuela is witnessing a miracle, a miracle of destruction.”



Patients lie on beds in the emergency room of a hospital in Barquisimeto, Venezuela.


Patients lie on beds in the emergency room of a hospital in Barquisimeto, Venezuela. Photograph: Bloomberg/Bloomberg via Getty Images

Her concerns were echoed by ten physicians interviewed in three cities across the country. Without exception, the expressed alarm and anger at the deterioration they see.


“Sometimes I cry. It is so frustrating,” said Carlos Menezes, who recently qualified as a doctor after training at Luís Razetti. “People are dying because of this crisis.”


Menezes, and every staff member interviewed at Luís Razetti, asked to be identified with a pseudonym for fear of repercussions in the current tense climate. Earlier this year, the president of the Venezuelan Association of Clinics and Hospitals in the state of Carabobo, was detained by police and questioned for three hours after he went on TV to complain about medical shortages.




Some patients have been waiting for six months to have bones reset because there are no rods, pins and plates




Two doctors smuggled the Guardian past security guards for a tour of their hospital, where the scale of deterioration was evident.


In the basement, the radiography room was permanently closed; patients were sleeping on dirty beds in the corridors. On the ground floor, doctors were staging a protest over shortages of drugs and medical equipment. In the second-floor trauma ward, some patients have been waiting for six months to have bones reset because there are no rods, pins and plates. In the pediatric ward, impoverished mothers of malnourished children were soliciting donations of food and medicine that the hospital could not provide.


The eighth-floor psychiatric ward was perhaps the most disturbing. “We have zero psych drugs so instead we use sedatives. The patients have been sedated for the past three months,” said Pablo Álvarez, another doctor at the hospital. ‘This is extremely bad because their pathologies are worsening the entire time and we are just masking the symptoms. The damage is irreversible.”


Luís Razetti is supposed to be the anchor hospital of the entire eastern region. As a level four medical institution, it should be able to deal with every form of treatment. The reality, however, is that it can barely cope with many of the basics.


In the orthopedic department, there are no weights for traction devices, so nurses used Coke and Pepsi bottles filled with water. Two dangle at the foot of the bed of Daniel Usman, whose femur was broken in a gang shootout. He says has been waiting two months for surgery because the blood bank does not have his type. Considered a suspect, he is permanently handcuffed to the hospital bed and has to buy his own painkillers.



Daniel Usman, who was injured in a gang shooting.


Daniel Usman, who was injured in a gang shooting. Photograph: Jonathan Watts for the Guardian

Staff say they have to reuse surgical gloves unless patients bring their own. There used to be six working radiotherapy machines; now there are none. Of the 10 operating theatres, only two are in use, though only sporadically because it is often hard to find anaesthetics. The air conditioning is out of order. Only one lift works. The x-ray is functioning, but there there are no printing materials, so doctors have to diagnose and operate based on mobile phone photos of the screen.


“We have to improvise like doctors in a war,” says Álvarez who has been at the institution for more than five years.


The battlefield analogy is made all the more appropriate by the ever-present fear of violence: staff and patients have been mugged in the hospital corridors. Five of the ten doctors interviewed by the Guardian reported receiving death threats.


“The insecurity in the hospital is worse than outside,” said one. “Gangs have entered during surgery and started shooting. They said if the patient cannot be saved, then we will be killed,” said another. “Two months ago, I was threatened with a grenade,” says a third.


But this pales in comparison to the dangers faced by the most seriously ill patients: children who cannot get adequate food, or cancer patients who are unable to get the appropriate chemotherapy treatments.


Nationwide, the Health Observatory believes malnutrition is the biggest worry, causing 29 child deaths every day and stunting of 35% of poor rural infants.


Until recently, the hospital in Barcelona only had a few cases of kwashiorkor (a deficiency of proteins, which leads to distended stomachs), but now for the first time, they are also seeing children with the more serious marasmus (starvation that causes emaciation and diarrhea).




The insecurity in the hospital is worse than outside … Gangs have entered during surgery and started shooting


A doctor at Luís Razetti hospital


“It has become much worse in the past year. I have seen about 20 cases of marasmus in the last few months. We are also seeing dozens of cases of extreme weight loss,” said Álvarez.


Doctors have also accused the government of downplaying the threat of the Zika virus. While neighbouring Brazil and Venezuela publish weekly updates of confirmed cases, Maduro has largely kept quiet about the virus. And while other countries in Latin America have reported hundreds of cases of Zika-related microcephaly, Venezuela has not acknowledged a single one.


Diphtheria is making a comeback, although Venezuela had been the first country in Latin America to eradicate the disease. The first few fatalities from the diseases were confirmed in Bolívar state earlier this month. Since then, there have been between 17 and 22 deaths, according to local media. Another suspected case is under observation in Luís Razetti.



A patient at a hospital in Merida, Venezuela.


A patient at a hospital in Merida, Venezuela. Photograph: Marco Bello / Reuters/Reuters

The situation is only a little better in Caracas. Thanks to its charitable foundation, the José Manuel de los Ríos Hospital is one of the best resourced medical institutions in the country, but it is also chronically short of drugs, staff and equipment.


Since 2005, the number of pediatricians is down from 10 to three, oncologists down from eight to four and there are 30% fewer nurses


Augusto Pereira, the head of the oncology department, said the mortality rate of patients had increased 5% in the past year. Infection rates are also creeping up due to shortages of staff, medicine and sterilisation equipment. Only one elevator is working. Two cats wander the corridors.


“Technically, our hospital should be closed. In other countries, we would be shut down. But in Venezuela, we are the best,” Pereira says.


Due to a shortage of anesthesiologists and operating theatres, there are only 15 to 20 paediatric operations a month, down from 100 in the past. Doctors are forced to argue with one another whose patients deserve priority.


“People are dying every day because of the delays,” said paediatrician Alejandro Ferrer. “We have to wait until the patients get enough money for the examinations, then we do the diagnosis, then we have to wait for at least three weeks for an chance to do surgery. If you delay the treatment of a cancer patient, they are going to die.”


Others suffer a collapse in quality of life. Fifteen-year old Jaidiluz Pastrana was born with neurological problems, severe spina bifida and a cleft palate and is also now suffering hypertension and urinary infection because the hospital has run out of diuretics and catheters. “I’ve lost count of how many drug stores I have been to in the past week, but there is nothing,” her mother Luzmery Hurtade laments. “A year ago, I could have found what I needed, but not now.”




In other countries, we would be shut down. But in Venezuela, we are the best


Augusto Pereira, head of oncology


Her daughter shares a room with Jose García, a five-week-old baby who has meningitis, hypertension, asthma, allergies and convulsions. The infant’s mother, Ana Blanco has a thick wad of prescriptions from the doctors to treat these ailments, but the hospital can provide nothing but a bed.


“I’ve spent more than a month looking for medicine. The doctor says it is important, but I can’t get it,” she says.


The public security problem has added to her woes. The previous Saturday, she was robbed at gunpoint outside the hospital on her way to a pharmacy. The assailant stole 6,000 bolivares, equivalent to $ 6 – or two days worth of her husband’s salary.


Faced by this combination of crises, medical staff feel powerless to help as they would like.


“Nine thousands doctors have left the country and the exodus is continuing,” says one of those who stayed, Yamila Battaguni. “I go to work worrying about broken elevators, supply shortages, staffing problems, and only then can I think about how to treat the patients,” she says. “We arrive exhausted even before we start surgery.”



Demonstrations against medicine shortages in Caracas. ‘I’ve lost count of how many drug stores I have been to in the past week, but there is nothing.’


Demonstrations against medicine shortages in Caracas. ‘I’ve lost count of how many drug stores I have been to in the past week, but there is nothing.’ Photograph: Juan Barreto/AFP/Getty Images

Those who remain do not do so for the money: a doctor with more than 20 years experience gets paid less than 10 pence an hour in the public system. Ferrer says his commute costs more than this wage, though with private work, he can bump his income up towards $ 1,000 per month. Even then, he finds it difficult to make ends meet, particularly when – like many doctors – he finds himself dipping into his own wallet to pay for medicines or exams for poor patients.


His hope is for political change. “We have two options: leave or be part of the change,” he said. “I hope this bad stimulus can make us want something better.”


Doctors have staged hunger strikes, medical associations have taken to the streets. Earlier this year, a group of 78 civil society groups jointly signed an open letter to the UN secretary general Ban Ki-moon, demanding the situation in Venezuela be recognised as a humanitarian crisis.


The opposition is also using the health crisis to score points against the government. Its expatriate supporters in Miami, Bogotá and Panama have gathered tonnes of medical supplies, but the authorities have blocked the supplies from entering into the country. It has also rebuffed offers of help from international charities and neighbouring countries .


Maduro insists it is not needed. “I doubt there is anywhere in the world, with the exception of Cuba, with a better health system than this one,” the president said earlier this year.


Such reassurances provoke grim laughter among doctors. “We are back in the dark ages in this country. Every day there is a tragedy. Every day children die,” Battaguni says. “We are facing a humanitarian disaster, no matter what the government claims.”



‘Like doctors in a war’: inside Venezuela’s healthcare crisis

1 Eylül 2016 Perşembe

India rolls out world"s first leprosy vaccine as fight goes on "war footing"

The first lesions appeared on teenager Rammurat’s feet. To those in his village near Gorakhpur, in the vast Indian state of Uttar Pradesh, the cause of the pale sores was clear.


“Some said it was black magic. Some said it was the spirit of the dead catching us,” he recalls.


“What will people think? What will the neighbours think?” he wondered when finally diagnosed at a nearby mission hospital – too late to entirely save his feet. “People used to hate looking at a leprosy patient. You see a lady [with symptoms] coming into the village, they will run away.”


India is officially leprosy free, meaning the disease afflicts fewer than one in 10,000 people. But specialists understand the true infection rate to be far higher, and the disease is still endemic in some of the country’s poorest districts.


Today India accounts for more than 60% of the world’s new leprosy cases and health officials have quietly moved to a “war footing” against it, one senior researcher says.


This week the government announced a major step: the world’s first leprosy vaccine, developed in-country but tied up for years in testing, will be rolled out in Gujarat and Bihar, two states where the problem is sharpest.


Among the oldest recorded references to leprosy – the ulcers, the gnawing away of a fingers, eyes and noses – appear in 4,000-year-old Hindu epics, the disease christened kustha, Sanksrit for “eating away”.


Long associated with sin and contagion, one Vedic legend holds that even a king was banished after developing the telltale sores. Rammurat, a 14-year-old when his symptoms appeared, sought treatment, but stood no chance against the stigma.



The government has provided residents of Tahir Pur who have leprosy with hand-operated rickshaws. Some have lost tissue in their feet due to leprosy-related injuries.


The government has provided residents of Tahir Pur who have leprosy with hand-operated rickshaws. Some have lost tissue in their feet due to leprosy-related injuries. Photograph: Michael Safi for the Guardian

Older now, Rammurat lives in a 30-hectare slum on Delhi’s north-eastern fringes. Rubbish collects in open sewers along the tight lanes of the neighbourhood and children mingle with tethered goats and chickens in the midday heat. It could be any poor community in the capital, but for the preponderance of wounds: missing toes, fingers, or entire limbs wrapped in white gauze.


Allotted to people with the disease a half-century ago, these blocks in Tahir Pur have grown into Asia’s largest leprosy colonies, home to 2,000 patients and their families, and a remnant of centuries of official policy to segregate them from the world. Rammurat arrived 25 years ago, seeking acceptance and access to treatment. “I moved here to save myself,” he says.


A few hundred metres away is the Leprosy Mission’s Delhi hospital, one of 14 specialist care centres the Christian group runs in India. Inside, hundreds crowd around waiting rooms and dispensary windows awaiting medicine, among them up to 150 leprosy patients each day.


It diagnoses on average one new case of the disease per day. “That’s alarming,” says Stephen Levi, the hospital’s superintendent. “And when we ask them to bring their other family members in, they don’t.”


Beside psalms and lists of symptoms on the hospital’s tiled walls there are, less congruously, pictures of the nine-banded armadillo: the north American mammal the only other species to naturally host leprosy, and a boon for researchers, who are still unable to grow the disease in labs.


For all the fear it conjures, leprosy, caused by the pathogen Mycobacterium leprae, has been effectively treatable since the 1940s. It isn’t particularly contagious either, its spread requiring regular contact with an untreated sufferer, and an immune system already compromised by genetics or poverty. Nor is it “flesh-eating” – limbs more likely to rot away because of injuries sustained by repeated use after the sensation of pain is lost.


“The real problem is the level of stigma,” says Dr Sunil Anand, the executive director of the Leprosy Mission. “Those who get leprosy tend to be ostracised and stigmatised by the community, they tend to hide away.”



Children work packing balloons in Tahir Pur, home to the largest leprosy colonies in Asia


Children work packing balloons in Tahir Pur, home to the largest leprosy colonies in Asia Photograph: Michael Safi for the Guardian

That makes containing the disease, or treating it before disfigurement sets in, harder. “Discriminatory practices then come into play. Like schools not giving admission to children with leprosy, or from a leprosy family. It’s the same in jobs, even healthcare,” he says.


About 16 national Indian laws still discriminate against people with leprosy, he says, a legacy of the ancient aversion to the disease, but also an 1898 colonial law that segregated patients and prevented them having children, passed in response to British panic an epidemic would spread back home.


A eight-year treatment drive by the Indian government shrunk the number of new cases four-fold by 2005. That year the government celebrated the official elimination of the disease, meaning a rate of fewer than one in 10,000 new cases a year. “Maybe that’s possible,” Levi, the hospital superintendent, says of the official rate. “But only because India has such a huge population.”


One of India’s leading leprosy researchers, Dr Uptal Sengupta, is more sceptical. The elimination figure trumpeted by the government and World Health Organisation was produced “in a hurry”, the 75-year-old says from his office, a bobble-headed armadillo on the desk.


More recent leprosy surveys produced by the Indian Council of Medical Research (ICMR) have a much greater prevalence, he says, but the Indian government has declined to release the exact estimate. (A source with access to the research told the Guardian the research showed a national rate of “roughly five to six cases per 10,000”.)


Battling high rates, health officials are also racing against time: leprosy strains are slowly becoming resistant to the multi-drug therapy that so successfully brought the Indian infection rate crashing down.


“When there was a monotherapy, it took only 30 years for the disease to develop resistance,” Sengupta says. “And we are already seeing resistance cases [for the multi-drug therapy].”



An aerial view of one of Tahir Pur’s 29 leprosy colonies in east Delhi. Spanning 74 acres, the colonies make up the largest leprosy complex in the world.


An aerial view of one of Tahir Pur’s 29 leprosy colonies in east Delhi. Spanning 74 acres, the colonies make up the largest leprosy complex in the world. Photograph: Michael Safi for the Guardian

The rollout of the vaccine, announced earlier this month, is part of a return to a “war footing” against the disease, he says. “The vaccine is the most important thing for elimination. It’s the best answer.”


Beginning in five hotspot districts in Bihar and Gujarat, the vaccine will be administered both to people with leprosy and those in close and regular contact with them, in combination with the antibiotic Rifampicin. Trials of the vaccine have shown it could bring existing rates down by 65% over three years, according to Dr Soumya Swaminathan, the director-general of the ICMR.


The rollout is accompanied by a new round of “active case detection” – health workers going house-to-house “to hopefully detect new leprosy cases which were undiagnosed in the community”. Fifty districts have already been swept, turning up 5,000 previously undetected cases.


“It’s a multi-pronged attack on leprosy, we’re looking to eliminate it” – a second time – “in the next five to 10 years,” Dr Swaminathan says.


That the vaccine is Indian-developed is also a source of pride. “It shows exactly how Indian research and development can solve our own problems,” she says.


In Delhi at least, efforts to remove the stigma around one of the world’s oldest diseases are also paying off – but not without cost.


As the capital expands, the giant leprosy colonies of Tahir Pur suddenly find themselves on prized land. Businesses are illegally setting up shop and developers are eyeing an area society once spurned. “Now, the non-leprosy people are trying to move in,” Levi says.



India rolls out world"s first leprosy vaccine as fight goes on "war footing"